A Cross-Sectional Study on Factors Affecting Maternal Trust in Texas Government to Make Good Decisions About Newborn Screening and Dried Bloodspot Storage

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dc.contributor.advisorRobert T. Mallet
dc.contributor.committeeMemberPeter B. Raven
dc.creatorNguyen, Huy David Dang
dc.date.accessioned2019-08-22T21:37:06Z
dc.date.available2019-08-22T21:37:06Z
dc.date.issued2015-12-01
dc.date.submitted2018-05-22T12:18:08-07:00
dc.description.abstractNewborn screening (NBS) results in a surplus of blood samples in the form of dried bloodspots (DBS). Texas’s “opt-in” policy requires mothers’ permission for the state to store DBS samples for research. A cross-sectional study was performed on post-partum mothers in North Texas to determine the effect of the mothers’ demographics, knowledge, attitudes, and decisions about NBS and DBS storage on trust in Texas’ ability to make good decisions regarding bloodspot research. The aforementioned trust in the Texas government was strongly associated with trust in Texas to keep the babies’ information private, belief that using DBS for public health was beneficial, and trust in Texas to de-identify their babies’ DBS. Medicaid coverage also showed a slight association with this trust. Overall, mothers who are supportive of public health research using de-identified specimens such as DBS are more confident in the Texas’s ability to make the right choices regarding DBS storage.
dc.format.mimetypeapplication/pdf
dc.identifier.urihttps://hdl.handle.net/20.500.12503/29463
dc.language.isoen
dc.provenance.legacyDownloads2
dc.subjectMedical Sciences
dc.subjectMedicine and Health Sciences
dc.subjectnewborn
dc.subjectscreening
dc.subjectdried
dc.subjectbloodspot
dc.subjectstorage
dc.subjectmaternal
dc.subjecttrust
dc.subjectTexas
dc.subjectgovernment
dc.subjectmothers
dc.titleA Cross-Sectional Study on Factors Affecting Maternal Trust in Texas Government to Make Good Decisions About Newborn Screening and Dried Bloodspot Storage
dc.typeThesis
dc.type.materialtext
thesis.degree.departmentGraduate School of Biomedical Sciences
thesis.degree.disciplineClinical Research Management
thesis.degree.grantorUniversity of North Texas Health Science Center at Fort Worth
thesis.degree.nameMaster of Science

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